Using the annual Carers Event in Hull, the Integrated Care Board Communications team spent time listening to local carers, and those being cared for, about their experiences, what they would like to see on NHS websites like Let’s Get Better and what one thing might improve access to care. The document also contains three case studies of carers who shared their experiences and suggestions for improvement.

Some of the issues that carers faced included a lack of trauma informed information, long waiting times in A&E, poor communication and consistency of care, and difficulty finding respite and support. Suggestions for improvement included having more GPs, more courses and career advice, disability friendly places, integration of electronic systems, and more reasonable adjustments for people with learning disabilities.

The proforma document can be viewed and downloaded below.